Background:
Holly serves as the 1st Non-Medical Board Chair of the I AM HEARD Coalition, where she is committed to advancing education, advocacy, research, and support for individuals living with Syringomyelia and related neurological conditions. Drawing from her own journey as a patient, she is passionate about improving access to knowledgeable providers, building meaningful partnerships, and ensuring that every individual feels heard, supported, and empowered throughout their healthcare journey.
Professionally, Holly brings more than 30 years of experience in financial operations, risk management, compliance, and leadership. Throughout her career, she has held a variety of roles focused on operational excellence, strategic problem-solving, and process improvement, helping organizations navigate complex challenges while fostering collaboration and accountability.
As Board Chair, Holly combines her professional expertise with her personal passion for advocacy to help guide the Coalition’s strategic vision, strengthen its impact, and expand resources for the rare disease community. She believes that through education, collaboration, and compassion, meaningful change is possible for patients and families everywhere.

