help Show those diagnosed with syringomyelia that they are finally heard

3% Cover the Fee

THANK YOU FOR MAKING ALL VOICES HEARD

Why Give?

Make a Difference

Your donation helps create real, tangible change in the lives of people living with syringomyelia. You can be the spark that pushes the medical system to listen more closely, do better, and take this diagnosis seriously.

Be Part of the Solution

Join a community of patients, families, clinicians, and advocates who are working together to confront an often dismissed, under-treated, and overlooked diagnosis. Your support helps turn frustration into organized action.

Inspire Others

Your generosity doesn’t stop with you. When you give, you show your friends, family, and colleagues that this community matters—and you invite them to stand with you in that belief.

Frequently Asked Donation Questions

  • YES. As a 501(c)(3) organization, any donations can be used as a tax write off. Proper documentation for such purpose will be sent shortly after donation has been made.

  • Donations to the I AM HEARD Coalition support multiple areas of our work, including education and awareness efforts, program development, events, grants for special care and quality-of-life needs, and other initiatives that directly strengthen advocacy for people living with syringomyelia. Our goal is to use every dollar as thoughtfully and efficiently as possible so it truly benefits the community we serve.

    We are committed to radical transparency. We plan to share regular financial updates on our platforms, including clear information about how funds are allocated and any future expenses related to staff salaries or operational needs. We believe donors and patients deserve to see how resources are actually being used.

    While we recognize the importance of research and are working toward a major research project focused on less invasive care and potential future treatments, our primary focus is building and sustaining grant programs and practical support for patients right now. We want people affected by syringomyelia to feel real, tangible impact in their day-to-day lives—not just hope for the future.