Disclosures

The I AM HEARD Coalition is committed to transparency, clear communication, and responsible stewardship. This page explains important disclosures related to our website, donations, educational content, and programs.

Organizational Transparency

The I AM HEARD Coalition is a nonprofit organization focused on advocacy, awareness, education, community support, and related initiatives for people affected by syringomyelia and associated conditions. We aim to communicate openly about our programs, operations, and how funds are used in support of our mission.

The I AM HEARD Coalition is recognized as a tax-exempt organization under Section 501(c)(3) of the Internal Revenue Code. Donations are tax-deductible to the extent allowed by law. Our EIN is 41-3095175.

Educational Only — Not Medical Advice

All information on this website, in our emails, social media, blog posts, grant materials, and related communications is provided for general educational and advocacy purposes only. Nothing on this website is intended to be medical advice, diagnosis, or treatment.

Please consult your physician or another qualified healthcare professional before making decisions about symptoms, diagnosis, exercise, rehabilitation, treatment, medications, or other aspects of your care.

No Professional Relationship

Using this website, contacting the I AM HEARD Coalition , reading our materials, applying for a program, or engaging with us online does not create a doctor-patient, therapist-patient, attorney-client, or other professional relationship.

Provider and Resource References

We may share information about providers, clinics, services, products, or community resources for general informational purposes. Any such reference should not be interpreted as a guarantee, warranty, certification, or promise of a specific result.

Every person’s medical situation is different, and visitors are responsible for evaluating any provider or resource with their own qualified professionals.

Donations and Use of Funds

Donations help support the I AM HEARD Coalition mission and may be used for advocacy, awareness campaigns, research-related initiatives, events, grants, patient support efforts, educational content, technology, administration, compliance, and other mission-aligned needs.

Unless a donation is clearly designated and formally accepted for a specific restricted purpose, donations may be used where they are most needed to advance our mission.

Grants and Assistance Programs

Any grant, financial-assistance, sponsorship, scholarship, or support program described on this website is subject to eligibility requirements, deadlines, available funding, review processes, and program terms in effect at the time.

Submitting an application or inquiry does not guarantee approval, funding, reimbursement, or ongoing support.

Testimonials and Community Stories

Testimonials, stories, and shared experiences reflect the personal views and lived experiences of individual community members. They are not guarantees of results, treatment outcomes, symptom improvement, or future program approval.

External Links

Our website may include links to third-party websites or resources for convenience and information. The I AM HEARD Coalition does not control and is not responsible for the content, accuracy, privacy practices, or availability of third-party sites.

Privacy and Communications

If you contact us, donate, sign up for updates, submit a form, or apply for assistance, we may collect the information you choose to share, such as your name, email address, mailing information, and details relevant to your request.

We use this information to communicate with you, administer programs, process donations, maintain records, and operate our organization. We do not sell personal information.

Please do not send highly sensitive medical records or urgent medical concerns through general website forms or standard email unless we specifically request them through a secure process.

Sponsorships and Partnerships

Ifhe I AM HEARD Coalition enters into sponsorships, partnerships, affiliate relationships, or receives in-kind support, we will aim to disclose material relationships where appropriate. Unless expressly stated, references to a company, provider, or product shoud not be interpreted as a paid endorsement.

No Warranty

This website and its contents are provided on an “as is” and “as available” basis. While we strive to keep information current and accurate, we do not make warranties or representations regarding completeness, accuracy, reliability, or suitability for a particular purpose.

Limitation of Liability

To the fullest extent permitted by law, the I AM HEARD Coalition disclaims liability for losses, injuries, claims, or damages arising from use of this website, reliance on its content, use of third-party links, participation in programs, or communications with the I AM HEARD Coalition

Changes to These Disclosures

We may update these disclosures from time to time to reflect changes in our operations, website, programs, or legal obligations. Any updates will be posted on this page with a revised effective date.

Contact

If you have questions about these disclosures, donations, or our programs, please contact us using the contact information provided on our website.

Effective date: 04/29/2026